[Journal Article] Comfort and Satisfaction with Care of Home-Dwelling Dementia Patients at the End of Life
Authors: Ri Yin Tay, Allyn Y M Hum, Noorhazlina B Ali, Ian Y O Leong, Huei Yaw Wu, Jing Jih Chin, Angel O K Lee, Mervyn Y H Koh
Published in: J Pain Symptom Manage. 2020 May;59(5):1019-1032.e1. doi: 10.1016/j.jpainsymman.2019.12.004. Epub 2019 Dec 16. PMID: 31837451.
The prescription of anti-cholinergic agents for secretion management and the limited use of antibiotics (≤1 course) in the last 2 weeks of life were associated with the comfort of home-dwelling advanced dementia patients, highlighting the importance of instituting measures in advance to prevent suffering and adopting a deliberated approach towards antibiotics use in advanced dementia at the end-of-life.
Family caregivers’ satisfaction with care post bereavement was associated with patients’ comfort and the fulfilment of medical intervention preferences, emphasising the value that family caregivers placed on these factors.
An interplay of factors is associated with patients’ comfort and family caregivers’ satisfaction with care. Modifiable factors can be targeted to improve the quality of care at home at the end-of-life.